And Now I Freak Out…

Today, we officially paid our deposit for IVF treatment. $1000 for that. Thanks COVID relief money! YIKES. I was all excited & ready for IVF until today. The weight of the financial component hit HARD. We got our start date, which is April 16th. I hate that we have to wait that long, but I’m VERY happy for financial reasons! I found out, when paying my deposit, that the rest of the cost will be due 1 week before our start date. So on April 9th, we will have to have paid $9580, which the deposit does not go towards. When we get closer, I will be paying for all of the meds when ordering them. This will be approximately $3000-5000, however a teacher with a different insurance company told her that she only paid $1000 out of pocket. This insurance is SUCKY for infertility and maternity. When I selected my current insurance, that was my main focus. So fingers crossed, insurance will help a bit. I will be able to use my flex account, but it will have to have specific codes, so I’ll have to be aware when using that money. My flex for the entire year is $2700. So we are basically looking at $14,000 in the next 95 days. Taking my entire flex off of that amount leaves about $11,300.

In total, about $15,000 to have a chance of making Baby A. There is a website that can calculate your chances for IVF treatment. For our circumstances, here’s what it says: There is a “Your chance of having your first baby after the 1st complete cycle of IVF is 60.95%. This means that out of 100 couples undertaking a 1st complete cycle, approximately 61 would have a baby.” Chances with a 2nd cycle is 80.5% and 3rd cycle is 89.15%

So all of that money, all of that time, all of those meds for a CHANCE to make Baby A. Not even guaranteed. How scary and frustrating is that?! Because my period began over the holiday and things got lost in translation/messages, I am able to try an IUI this month. I will go on the 11th (next Monday) for my ultrasound. So fingers and legs crossed, this is the one! If we get pregnant, we don’t have to think about IVF! So I should take a pregnancy test for that IUI around the end of January. But I am going to plan and think as if we will need to continue with the IVF because that’s a LOT of money in a LITTLE amount of time.

We have decided to create a GoFundMe campaign and share our CashApp & Venmo usernames to give anyone that wants to financially support our IVF journey the opportunity. We do not like asking for money. We thought about this for a long time before deciding to go ahead with it. I’ve added a page on this site with information on our campaign & such. Feel free to check this out if you want. No worries if you don’t want to or can’t. You can support us through reading this blog, DUR, and your thoughts/prayers/positive vibes/whatever your beliefs. This has been a long, lonely journey and opening up to share about it was tough. So opening a “fundraiser” was even more difficult.

I’ll be working on applying for grants, scholarships, and whatever other financial options that are available (and then loans) until we have solidified the money for treatment. Fingers crossed! One of the companies that provides packages for IVF to help with financing filed for bankruptcy in May. Sooo…..that’s an interesting (and super scary) thing. Welcome to infertility, my friends!!

Click here for our GoFundMe page

I’m sure I’ll be freaking out more as it gets closer to our start date, and the increased hormonal meds won’t help calm that at all. 🤪

Update

I haven’t wanted to write a blog post. I haven’t wanted to really do anything regarding our journey. The last time I got on social media before today, I had jokingly posted about being annoyed with seeing several birth and pregnancy announcements upon scrolling for less than a minute. Someone commented about not knowing that lady’s journey, and I get it. But I just had to say it. I know I don’t know everyone’s journey or struggles. Many women never speak about infertility or struggles. I get it. BUT I also feel I should be able to openly talk about MY struggles. Shit, just posting that on Facebook was huge for me. I feel like the WORST person for getting upset about pregnancy and births. I mean come on!! Who wants to be negatively impacted with new life?? I just do not have the emotional bandwidth to deal with pregnancy or birth announcements right now. I shouldn’t have to explain myself. I’ve even been slightly open about our journey. What if I had shared NOTHING about my infertility and posted that?! All of it just makes me want to say “fuck it” and isolate.

Today was my first time on social media. I scrolled for a few minutes and couldn’t handle any more. I am not strong. I am not unbreakable. But I’m expected to act as so. It takes so much of me to return text messages, read text messages, anything. I can’t explain it. With everything going on with our infertility and COVID, being on fertility meds makes just living life almost unbearable. It takes everything I have to go through my daily life and not fall apart. So I’m a sucky friend. A sucky wife. A sucky daughter. A sucky sister. And MIA on social media. I am truly sorry. I miss people. I miss my friends. But I just can’t. If you are reading this and love me, please understand. It’s not that I don’t want to communicate. It’s not you. I just physically and mentally can’t.

As for our journey and the update, our 9th and final IUI was December 11th. We tested on the 26th, the day after Christmas, with yet another negative. So we had to make the tough decision whether or not to move onto IVF. Each failed IUI, I have responded differently. Sometimes I’ve been upset. Sometimes I’ve been pissed off. Sometimes I’ve just needed to move on and process it later. This time was a move on and process it. I didn’t want to feel pitied. I didn’t want anyone to feel sorry for me. I didn’t want “that look”. I needed time before I could talk about it and process everything.

So we are waiting to hear from OU in order to pay the deposit and get on the list for IVF. Now to figure out how to pay for this 5 figure attempt to make a baby and pray that its a one-and-done.

Who wants to offer us jobs in New York so we can move there and get IVF for free & covered by insurance?! Just kidding….but Oklahoma (and all other states), get on it!! Gender reassignment is covered by insurance but IVF isn’t. Where is the logic in that?!

My Title Goes Here…

Yesterday was our 8th IUI. I don’t need the nurses to tell me what to do. I know what my doctor says when doing my ultrasound, though I have no idea what it means. “Uterus is antiverted and trilinear”, “8 less than 10 on the right”, etc. The good news is that my body is reacting to the meds still. The bad news is that by now, we should be pregnant. Meh. So our test date is the 24th. We need all of your prayers, positive vibes, crystals, whatever your beliefs!

I was thinking yesterday about this and how to truly convey what it feels like and how to explain it in a way that others can empathize. I realized why this kills me so much, too.

If you know anything about me, I am an overachiever. I set my sights on something, and I will work my ass off to achieve or accomplish it. I will do hours and hours of research to find tools, strategies, whatever. I will do everything in m power to make it happen. I’ve been this way my entire life. It’s an okay trait to have…until infertility.

There are things I can do to improve our chances of conceiving, of course, but at the end of the day, it’s up to God and chance. That KILLS me. We have done everything in our power to increase our chances. But with infertility, you can do everything right, time it perfectly, have the best eggs, have 10 million sperms, and still not get pregnant. I hate it.

So, here’s to 2 weeks of waiting. 2 weeks of trying to keep my mind off of getting pregnant. 2 weeks of constantly thinking of getting pregnant but trying my damnedest not to. 2 weeks of hope. 2 weeks of agony.

Not only this, but COVID-19 just keeps getting worse. A new study found that pregnant women have an increased chance of having severe cases of COVID if/when they get it. They’ve also added “pregnancy” to the high risk group. I am already considered high risk because of asthma (mild, so not really), high blood pressure, and obesity. As I’ve posted before, at our fertility clinic, neither of us can enter the building if we have symptoms related to COVID or have been in contact or possible contact with infected people. While antibodies mean you won’t get the same strain of COVID, it doesn’t mean you are completely immune, and there are other factors that contribute to germs and infection. In getting clarification this week about COVID & fertility, I learned that not only can we not enter, but our treatment will be terminated. My doctor did not say for how long, but I’m not willing to take the risk. And I am not sorry. Austin and I have been trying to expand our family now for over 2 years, with over a year at the fertility specialist. We’ve spent a TON of money thus far. We are letting NOTHING stand in the way of bringing a child into this world. We deserve it. Does it suck?! HELL YES! Will it be worth it?! Is that even a fucking question?!? I don’t understand why it’s a shock that we are being super serious and firm about our exposure to COVID. We are not going to sacrifice our treatment, progress, and child for anything. We are cautious. We stay home.

Please, for the love of God and all that is holy, WEAR A DAMN MASK. STAY HOME. STOP THE SPREAD. This is a preventable disease. It’s killing thousands. I’d love to see my family, my students, and hug my friends, but I am not going to risk our treatment and children to do so.


Because I’m an academic, here are some articles for you to peruse. 🤪

7th Hell

Well, yesterday was test day…

What it should look like…

Every time I get a negative test, I react differently. There are times that I’m just upset. Sometimes, I am sad but hopeful. Sometimes I’m just pissed off. This time, if you couldn’t tell based on the title of this post, I’m pissed off. I’m angry. I’m fucking over it. We have now been trying for over 2 years. We’ve been seeing the fertility specialist for a year. We have 1-2 more cycles before having to make a huge decision—whether or not to move forward with IVF.

So yea, I’m pissed. I’m mad. How this whole process works…you don’t know what exactly the issue is when IUI fails. Once you are doing IVF, they take away issues such as eggs dropping and fertilization, but there could still be issues with the implantation of the egg. Right now, I haven’t been pregnant, so I know my issue is at or before implementation. This is so frustrating to me. In my career and professional life, we are able to identify the problem quickly without just throwing in stuff and hoping it works. So the infertility process is annoying. Lol! I would just like to know what the problem is, and intervene based on it, like I do in my profession. But it’s not like that….yet. I assume with constantly improving technology and research, the field will eventually get there.

What I’ve learned in this process is, it’s okay to have negative feelings. It’s okay to sit in those feelings. Toxic positivity permeates infertility, especially from those outside of it. So I’m sitting in my anger. I’m sitting in my frustration. I’m sitting in my feelings. Will I stay here? No! But it’s okay for me to feel. It’s okay for me to be pissed every time I see a pregnancy announcement. It’s okay for me to be pissed when hearing about abortions. It’s okay for me to be pissed about parents having more babies when they can’t take care of the ones they have. It’s okay to be pissed about baby birth announcements.

I can’t remember if I’ve talked about this, but I am taking progesterone. I can’t remember how many milligrams, but its twice a day after the IUI. So with a negative pregnancy test, I immediately stop taking those. What starts a period is a sudden drop in progesterone. So after my negative test, this happens and I start my period in the next couple days to start this whole cycle again. So anger about the negative, then sudden changes in hormones, and then period time. It’s a wonderful combination!!!

Until my period arrives, all I can do is wait on it. Then I call the clinic on day 1. So here’s to another fucking period and another fucking month without a baby. And please do not tell me to not stress or try to pacify me with positivity crap. Be uncomfortable in my anger and pain. Hug your babies tighter. I’d give anything to have a sweet baby,with half of Austin and half of me, to hug. For now, I will drink my sorrows away and maybe, just maybe, this will be my last chance to drink for a year!

The Two Week Wait

The two week wait is the longest 2 weeks of anyone’s life! There is so much that happens in this time IF you do conceive. It’s crazy. Pretty much every 2 week wait we’ve had, I have done research. I always feel new or different symptoms, even though I try not to. I try not to think of the impending date, but try to stay hopeful. It takes several days for the fertilized egg to travel down to the uterus, and several more days for the fertilized egg to implant into the uterine lining. The crazy increase in hCg hormone is what causes early pregnancy symptoms, so you really don’t have those until right before your two week wait is over. I know this. I remember this. But every time, something happens, and I wonder if it’s an early pregnancy symptom. It’s a constant battle between being positive and hopeful and not getting too excited. It is EXHAUSTING! We test on October 22, which is our date-iversary! 4 years ago on that date, was our first date. How amazing would it be to get a positive pregnancy test on this day after 2 years of trying. So positive thoughts, prayers, fertility dances, or whatever you believe our way would be appreciated. This road is HARD.

Currently, every time I get on social media, someone else is pregnant or someone else has a newborn. I just can’t deal. In the past, the day I take a pregnancy test until my period is over is the hardest time. Period emotions on top of disappointment and sadness is not a fun time. I tend to completely isolate during this time. About when my period is over, I have renewed hope. This is because the next cycle is just on the horizon. Fertility meds have my emotions and everything all jacked up. I’ve been on them so long that I don’t know what’s normal anymore. Lol! Poor Austin!

At this point, i don’t know what to share. I feel like I’ve poured out my guts, but I feel like there is still so much to share. I want whoever reads this to truly understand the journey and shittiness of infertility. I want this to be an awakening, so that people stop asking women when they are having a baby. So people will feel comfortable to talk about their infertility. So people will stop saying hurtful things when you tell them about infertility.

What do you want to know? What questions do you have? Help me out! (If anyone is actually reading this..lol)

COVID…

I had to post here so I won’t on Facebook, but…..

If I have to stop fertility treatment AGAIN because you people cannot wear masks, socially distance, and stop the spread, I AM GOING TO LOSE IT!!!!!!!!!!!!!!!!!!!!!!!!!!!!

We had to stop in March because of the hospitalization numbers, and those are rising at a scary rate.

IT IS NOT JUST ABOUT YOU! So please, for the love of God, LISTEN TO THE MEDICAL PROFESSIONALS!!!!!!!!!!!!

🎶🎶It’s Just Emotions Taking Me Over🎶🎶

There are moments when dealing with infertility is unbearable, and there are moments full of hope. Unless you’ve experienced it, its hard to put into words. At this point, I’ve been on fertility meds (hormones) for almost 18 months. I don’t know what “normal” emotional responses are anymore. Then add on the stress and all that goes with trying to conceive when dealing with infertility.

Right now, I am in my angry but hopeful stage. I get on social media, scroll a bit, and see like 4 baby birth or pregnancy announcements, and I’m done. I cant take it, so I avoid social media until I forget why I was avoiding it.

This part is one of the biggest struggle, in my opinion. Of course, you are happy about new life and happy for the couple. But at the same time, you feel a bunch of negative things—anger, jealousy, frustration, etc. When you speak about these feelings out loud, you feel like a terrible person, and worse, people say things about how you don’t mean it, your time will come, etc etc. This makes you feel like an even shittier person. When you experience this enough times, you learn its just better not to say anything to anyone and avoid any place that may have these announcements.

This toxic positivity that we have in our society makes people’s reactions to infertility callous and cold. If an infertile makes a comment about what not to say to them, they are berated for being so mean. Look, I get it. You want to make others feel better. Others’ pain makes people uncomfortable. This whole thing is the biggest reason i decided to start blogging. It will take explaining and educating to fix this. Most people dealing with infertility and going through treatment do not want to talk about it. It’s an emotional process. It sucks. People respond in hurtful ways. So we keep it in. We silently struggle. The cycle continues. We don’t need reassurance. We don’t need you to give advice. We don’t need you to make us feel better. Don’t assume. Another post at another time, I’ll explain why certain things are hurtful and the wrong response.

I guess I could give an update on where we are in the process. Lol! Since this whole blog is new, I don’t know what info you are wanting to read. I haven’t yet shared the specifics of our cycles and journey, but will probably do so in a later post. This is our 7th IUI cycle, and insemination happened on October 7th. Now, we are in the dreaded 2 week wait. We take the pregnancy test on the 22nd, which is our date anniversary! We are taking this as a good sign! This 2 weeks is full of not wanting to obsess over if there’s a baby growing, but thinking about it, having phantom pregnancy symptoms, etc. I have chosen not to drink after the IUI, so its also 2 weeks of not drinking. Lol! We have a little over a week until test day, so we just wait. 🙃

Taboo? Screw You! 💁🏼‍♀️

I have been tossing around this post for several months. I don’t like sharing things that are currently a struggle because I don’t want to come off like a victim, bring more negativity, or seem like I’m whining. My purpose for sharing my journey, especially the hard stuff, is to give others hope, educate, and help people that are silently suffering. Buuuuut here we go. Welcome to my novel. Hehe!

Infertility. Those that haven’t had to deal with it, they think they know and understand. Those that have dealt with it know that is just not possible. There’s no nice way to say that, and I’m not sorry. This is my blog, so I am going to be real with whoever decides to read this.

First, a little lesson in reproduction. I have learned WAY MORE about this process than anyone wants to know. Lol! When a woman starts her period, that is cycle day 1 (CD1 for those in the trying to conceive—ttc—community). Cycles are 28 days in length, on average, with ovulation happening sometime between CD10 and 22, usually. Anyone sexually active in high school has a 100% chance of getting pregnant each month. Anyone sexually active, unmarried, and under 25 has a 100% chance of getting pregnant each month. The rest of the world of healthy couples, each month has a 20% chance of getting pregnant. There is about a 24-36 hour period of time where conception can happen every month. Insane, right?! So a couple that is “trying to get pregnant” is not just having sex. They are tracking the woman’s cycle in order to have sex in the right time frame to hopefully have the egg and sperm meet. This usually is done by tracking body temperature every day. There are certain patterns that are common with determining if a woman has ovulated and pregnancy. Medically “trying to get pregnant” involves tracking cycles and having sex during the ovulation window. On average, it takes couples 6 months to get pregnant once they start trying. Infertility is defined as “trying” for 12 months. This is because if there are no issues with either partner and they are tracking cycles and trying, they should be pregnant. At that point, the couple will see a doctor. There are many things that may be the root of infertility, for example woman doesn’t ovulate, low sperm count, low sperm mobility, over or under weight, etc. This is why it is really frustrating to those suffering with infertility when someone tries to instantly give advice, tell about a friend’s struggle and what they did, etc. Every situation is completely different. It’s like cancer—different stages mean different things and different levels of treatment. You wouldn’t tell someone that discloses their cancer diagnosis about your friend that had stage 3 whatever cancer and had chemo and it was so bad; or tell them they should try some essential oil to cure it; or ask the prognosis; or tell them to just live their life. YOU WOULD NOT! So do not do it to those of us suffering with infertility. If someone is disclosing to you their infertility, shut your mouth, listen, be empathetic (silently), thank them for trusting you, ask how you can support them, and clarify their wishes future conversations about the topic (they want you to ask for updates, they will volunteer info, etc).

I guess this is where I start sharing our story. This actually starts as my story, and it begins when I was 18. Quick story…I had some tummy issues my freshman year of college, saw a GI doctor, had a bunch of tests, and everything was normal. Actually, my story starts sometime in high school. I did not have a regular period, so I went on birth control. For reals. My sophomore year of college, I was switching meds, so I was waiting for my period. 9 months later, it did not come (and I was a virgin). So I went to the doctor and had a bunch of tests ran. One was a vaginal ultrasound, which is basically a penis shaped probe with a condom and lube that is wisked around inside you. As a virgin, this was a horrible experience. After these tests, my doctor diagnosed me with Polycystic Ovarian Syndrome (PCOS) at 19 (2008). My mom was freaked that I would never be able to have children, but my doctor assured her that when the time came, there were options. Fast forward to 2013…my best friend had her baby, I had been married to a man for 2 years, and we decided we were ready to begin “trying”. This included 2 hour round trip visits to the gynecologist at least once a month with a $75 copay each time, tons of tests, etc. PCOS keeps some women from ovulating. My gyro determined that was the reason we hadn’t been successful. There are 2 meds that force ovulation (Femara & Clomid). You take these a couple days after the start of your period for 5 days, and then there is a 5 day window (ovulation) where you should have sex every day or every other day. It ended up being 2 years of trying with no pregnancies, 6 cycles of each ovulation med. Every month, it was a fight to “try” during the ovulation days. During this time, I think maybe 3 people knew. All of my friends were getting pregnant, and most were accidents. Every negative pregnancy test felt like a piece of my heart was ripped out. Having hindsight, I am so grateful & thankful & blessed that I did not get pregnant during that time. I would NOT want to deal with my ex because of a shared child. That is the only thing that makes those 2 years somewhat bearable. I’ll get into the emotional aspect later. In thinking about this time and when in the future I’d try again, I was hopeful that it was the situation that was the issue and not my body.

Of course when dating Austin, and talks about children were had, I shared my history and the fact that it could be difficult for me. We both want a family, both made from us and adopted. We dated for about a year and were engaged for about a year. Towards the end of our engagement, we decided we were ready to start trying, but wanted to wait until after the wedding. So I stopped taking my birth control the month before our wedding, August 2018. My periods weren’t regular and I was not pregnant, so I went to see my doctor. The same day she removed my mole was the same day we discussed options and the plan. I was to take meds to jump start my period and then begin Clomid (forces ovulation) a few days into that cycle. The day I started my period was the day I got the call that my mole was melanoma. This didn’t hit me until I asked my doctor about starting the Clomid and she told me I needed to wait until the melanoma was taken care of. This is when I broke. We had already been trying & waiting for 8 months, and we had ANOTHER obstacle to starting our family. 2 years of trying previously and these 8 months and an added unknown amount of time just hurt. BTW, FUCK cancer.

Finally, in May, we were able to get back on track. I took Clomid and from cycle day 10 until about 24, I would pee on a stick for ovulation predictor tests. It was supposed to be until I had a positive test, but my levels were very low and never showed a positive. I would take a pregnancy test on cycle day 28 and 35, and if they were negative, I’d have to take meds to jump start my period to begin the new cycle. We did this from the end of May until the middle/end of September. Still nothing. At this point, my doctor referred us to OU Reproductive Medicine (aka fertility clinic; reproductive endocrinology; fertility specialist, etc).

On my birthday last year, we had a consultation appointment with Angie King. She’s a PA, but we call her Dr. Angie. She is INCREDIBLE. We LOVE her. At this appointment, we extensively went over medical history for both of us, and she mapped out our next steps. This was a sperm analysis for Austin, and a bunch of tests for me (blood test, vaginal ultrasound, HSG). The HSG is where they shoot dye into your uterus and take xrays in order to identify any flow issues. After we completed these tests, we had another consult with Dr. Angie to create our treatment plan. There are a bunch of treatment options within the continuum at the fertility clinic. We did not start at square one. We basically started at square 10. Our treatment plan included 4-6 cycles of IUI.

Most people recognize IVF, so IUI is basically the step before IVF. It is intrauterine insemination. In short, the sperm is collected and then medically inserted into the uterus. This process really starts on CD3, which is when I start to take Femora. I go in for an ultrasound somewhere around CD10-12 to look at my follicles. Every month, you have follicles that grow and release an egg. The egg is only “good” for a short time. So when you are having help, you want the sperm to be in the uterus as close to this drop as possible. How they estimate this is by measuring the follicles at the ultrasound appointment. Once they get to a certain size (somewhere around 16mm if I remember correctly), they double in size and will release the egg within the next couple of days. At the ultrasound, they check the follicles, and if there are ones bigger than 16mm, they will tell me when to do the next steps of treatment (come in for the insemination). If there aren’t any that big, I have to go back for another ultrasound in a couple of days. The first few cycles, I had to go in 2 or more times before being able to do the IUI.

Once the decision is made for when the IUI will be, we also are told when to do the trigger shot. This is done around 36 hours before the insemination. This trigger shot is hCg, which causes the body to ovulate and drop the egg. This was a scary thing the first few times. The pharmacy sends us a vial of powder, a vial of saline, 2 large needles, 2 small needles, 2 syringes, and 4 alcohol wipes. The clinic gives us a paper with the instructions and videos to watch, but it is still terrifying! Typically these have been at 11pm. I’ll probably do a separate post about each experience, because there have been some funny/interesting ones. Then we have our IUI appointment the day after next. Austin’s part is between 7:30 and 8, so we usually try to get there around 7:15. This means we have to leave Weatherford around 6am. Austin provides his sample, and then we wait for my appointment (most of which are 10:30). While we wait, the lab takes the sample and preps it for insemination by cleaning the sperm to remove anything that could slow them down or get in the way. They also do a count of the remaining healthy sperm. When it is finally time for my turn, I go in with a full bladder. A nurse does the abdominal ultrasound while another person puts in the clamp and the catheter into my uterus. They bring a tube, which holds the sperm, and verify that the name on it is Austin’s. Then they wiggle the catheter to make sure I can see when they shoot the sperm in there. Just like that, it’s done. I lay there for 5 minutes and then leave. They tell me what day to take a pregnancy test, and the slow, dreaded two week wait begins. For the last 3 cycles, they had me take progesterone vaginal suppositories twice a day. Apparently the side effects are the same as early pregnancy symptoms. How fun…

At this point, we have done 6 IUIs. We had a consultation before our previous IUI since our original treatment plan was 4-6 cycles. Because my body is finally responding the last few cycles, we are going to do 2-3 more cycles of IUI at the most. After that, if still no baby, our next step is IVF if we choose. We haven’t yet decided or discussed what next, and we are hoping we don’t have to. I go in tomorrow for the ultrasound for what will be our 7th IUI (and hopefully final). I plan to post more and go into more detail, especially the emotional aspect. This is already a novel, and this post has been in process for weeks.

Remember, don’t ask about babies, don’t try to make people feel better when they tell you they are infertile, don’t suggest adoption, and don’t share advice. Just shut your mouth, listen, and know you will never understand fully. 💕

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